Sunday 28 April 2013

Keep Your Hair On!

Sunday 28th April 2013

The last time I wrote a blog post, I was about to go into hospital for my seventh chemo session. I’m pleased to say the session went ok, with best friend Libby there to support me while Flo went back to Builth for a night. During the time in I also started my radiotherapy. I’m taken down to the department in a wheelchair by a porter, with Mum having to scuttle alongside to keep up with his fast pace of around 90mph! On the second day of treatment one of the Radiographers said “Oh I see you’ve bought a friend with you today?” (Meaning my drip) To which I replied “Oh no that’s just my Mum!”
I have now completed fifteen sessions out of twenty eight. The process of having the radiotherapy is fairly simple, with me wearing the mask (which I explained about in my last blog post) while the radiotherapy is given and it only lasts a couple of minutes. I have had to use aqueous cream on my head a few times a day to prevent it from becoming sore, which is a common side effect of radiotherapy. Another possible side effect can be short –term memory loss....now then what was I saying?!
Whilst recovering after the chemotherapy, both Flo and I nearly ended up back in hospital at A&E! One morning whilst taking a shower (which is positioned over the bath) and lathering up, I slipped and fell hitting my head in the process! Upon hearing the commotion Flo called upstairs to check I was ok, but there was no answer as I couldn’t hear her because of the sound of the shower. She dashed upstairs in a panic, thinking I must have fainted, nearly having a cardiac arrest on the way! Luckily I was ok apart from a sore head and perhaps now a red face from admitting I’m a bit of a clumsy fool!
Last week I had my wig cut and styled and I know a lot of you have seen it via Facebook. I was overwhelmed by the amount of ‘likes’ my picture got and it gives me confidence to know it looks good! I was advised by Nicky (the hairdresser) to keep the length long and he suggested I looked more of a ‘structured’ type of person, so to go with a Jessie J style blunt fringe. I told him she’d already copied my style by having it all shaved off! I was happy to go with his advice as he said it’s quite different cutting a wig to normal hair. I’m really pleased with the outcome and it makes it so much nicer and easier to go out, especially in the evening time. With this in mind I decided a celebratory night out was in order and my Uni friends Lisa and Dani came down to Birmingham for the night. We headed to Brindley Place for a meal at Piccolino’s and to Pitcher and Piano and Walkabout for a few drinks and a boogie! The night was really good; especially as it was the first proper night out I’d had since September!
Lisa and I also went pottery painting last week, as we fancied trying something a bit different. It was actually really good fun and very therapeutic! You could choose from an array of items to paint including plates, bowls, trinket boxes and cups and saucers. We decided to both select plates and used floral stencils to create Cath Kidson style designs. I’m picking them up next week when they’ve been glazed and fired and would love to try this again in the future! Flo took this opportunity to escape once again and headed into town on the 99 bus! I’m always laughing at her fascination with buses here in Birmingham; I guess she’s never seen so many as it’s quite different to Builth where you only have one every two hours!
 
In the last couple of weeks my sister Becca and her boyfriend Luke have visited, along with my Dad which has been lovely. Mum’s friend Sandra also came up for the weekend and we all enjoyed a canal boat trip over Brindley Place on a lovely sunny day. My former boss Matt (from George) and his wife Josie also called to see me last Sunday and we spent a lovely few hours catching up.
 
The London Marathon has also taken place since I last posted, so I’d like to take this opportunity to congratulate Rachel Williams on her fantastic achievement, completing the race in five hours (with an injured hip) and raising over a £1250 (+ gift aid) for Teenage Cancer Trust and the same for her Mum’s chosen charity Pulmonary Hypertension Association. Thank you to all those who provided sponsorship, I know the money will be greatly appreciated.
 
I can’t believe it’s nearly May and I’ll have been living in Birmingham for around six months! Although we’ve made friends with a few of the locals, our neighbours clearly don’t think too much of us. The occupants of the two houses opposite have up sticks and left and the neighbours next door are moving to Australia as soon as they sell! Think it must be something to do with Flo’s singing or perhaps it’s her neighbourhood watch tendencies?!
Flo and I are glad the winter is over and the nights are getting lighter, which makes going through all of this so much easier. Tomorrow I’ll be going back into hospital for my eighth chemo session. That’ll be eight down, six more to go.

 

Sunday 7 April 2013

Easter: The Only Time of Year It’s Safe to Put All Your Eggs in One Basket!

Sunday 7th April 2013

Unfortunately I started writing this blog post from my hospital bed! The week before last I had to be re-admitted following a high temperature. It all started a week last Monday - my temperature was high that morning and when I came into hospital to get checked out, bloods were taken and analysed, revealing my hb levels were low so I required a blood transfusion. The next evening I was at home feeling fine, when I checked my temperature (which I have to do twice daily) and it was up once again. Into hospital Flo and I dashed as having a high temperature can be a sign that you’re neutropenic (when your immune system is at rock bottom) and can be life threatening. Fortunately this wasn’t the case for me this time, although I had to have fluids, antibiotics and paracetamol to bring my temperature down as I may have had an infection. A chest scan I had had a few weeks previous had revealed that there was something showing on my lungs, which may have been the beginning of an infection. Prior to having tablets to clear this up, the doctors were unsure as to the cause of my temperature and decided that I should have my PICC line out incase this was the source. It turned out it wasn’t and I once again had the pleasure of having another PICC line put back in my arm. However, this is much better than all the cannulas I had to have put in over the 10 nights I was in hospital and all the prodding of needles to take blood at 5am each morning!
I’m back home now on weekend release, as temperature has finally come down. I’m due back in tomorrow for my seventh session of chemotherapy. I was hoping to go back to Builth Easter weekend to catch up with friends and family, however plans for this had to sadly be cancelled.
While I was in for my sixth session of chemotherapy, I went down to the radiotherapy department to be measured and fitted for my mask. The mask is something I have to wear during the sessions to protect my face from the rays. My oncology consultant has now decided that I need to have ‘electron’ radiotherapy, which will be twenty eight sessions in length, beginning 8th April. This was supposed to start on the 2nd April, however couldn’t commence until my temperature had stabilised. Using electrons means there’s less chance of the rays penetrating my brain, whilst still being effective on the areas of skin on my head that it needs to. I also had some positive news whilst I was in - my head and chest scans have come back all clear of cancer, which was a big relief.
Becca, Dad and Luke came up for her Graduation on the 15th March and although I couldn’t attend, they all came to visit me in hospital, along with her friend Jazz. Becca had a great day and it was lovely to catch up with them all.
Flo and I attended Crufts a few weeks back. We had a great time, watching some of the agility events in the main ring and meeting some of the French Bulldogs and their owners. I want a dog more than ever now!





My friend Dani and I went to the Olly Murs concert on the 12th March. We had a fantastic time, as he put on a great show! He was supported by The Loveable Rogues who were on Britain’s Got Talent and a girl called Titch who were both really good.

 
I was booked into the Manchester hair salon last week to have my final wig fitting. I was hoping to get it sorted before my radiotherapy. Again, this had to be cancelled because of my high temperature so will have to re-book for after the radiotherapy now, which looks like it will be May time.
Hope everyone has a lovely Easter and received lots of eggs! I’ve already received some from my lovely friend Sarah! I can also reveal that Sarah was the mystery person behind the anonymous package I received in the post around Christmas time! This came to light a few weeks ago when I was using my notebook and telling her the story of how I didn’t know who it was from!! For Easter I was also treated to a few lovely cards and presents from my Aunty Sue (Pooky to us). She bought me lots of lovely pamper gifts and lottery ticket and scratch card. I won £5 on the scratch card and have promised her half the winnings!! Haha
Can I just also take this opportunity to thank Rachel Williams for running the London Marathon, to raise money for Teenage Cancer Trust. The marathon takes place in two weeks time and I’d like to wish her all the best! If you’d like to make a donation here’s the link: http://www.justgiving.com/Rachel-Williams20 or alternatively if you’re in Builth then my sister and Rachel both have sponsorship forms. Thanks all.